About the author
Ayoposi Ojelabi
Author · Patient-Voice Essayist · Living with CIDP
Ayoposi Ojelabi is an author based in the United Kingdom whose work explores illness, rehabilitation, resilience, and the human experience of rebuilding a life after profound neurological disability.
His writing began during rehabilitation following a diagnosis of Chronic Inflammatory Demyelinating Polyneuropathy (CIDP), a rare autoimmune condition that progressively took away his ability to walk, use his hands, speak, eat, and eventually breathe without assistance. Over the course of his illness, he spent ten months in intensive care across four hospitals before beginning the long process of rehabilitation that continues today.
What began as a private record of survival gradually became something much larger. Through books and essays, he examines not only the physical realities of severe illness, but also the emotional, relational, and spiritual questions that emerge when life changes beyond recognition. His work reflects on identity, dependence, grief, hope, family, assistive technology, healthcare, and the quiet discipline required to rebuild a life one day at a time.
Unlike many memoirs written after recovery, Ayoposi’s work is created while the journey is still unfolding. This perspective gives his writing a rare immediacy, documenting recovery from inside the experience rather than through hindsight.
“Much of it has been written using a head-tracking device attached to his glasses, because his hands remain unable to type reliably.”
The Books
Three books, one unfolding record
These books were not written after recovery. They trace different stages of illness, rehabilitation, and the search for meaning in circumstances that cannot easily be explained.
Book One
Finding Strength in Numbness
A memoir tracing the journey from the earliest symptoms of CIDP through diagnosis and rehabilitation.
Book Two
Through Fire and Silence
A reflective exploration of illness, vulnerability, relationships, and how adversity reshapes who we become.
Book Three
Still Here
What It Takes to Survive When Everything Is Working Against You.
A different kind of story, for someone very small.Not every book here comes from illness. This one comes from a quiet morning routine with his daughter, Tiara, proof that love often shows up in the smallest, least dramatic moments.
PICTURE BOOK
When Daddy Works
Every morning, Daddy sits at his desk, puts on his headset, and the day begins. One morning, Tiara wakes up early and quietly climbs onto his lap and waits. A gentle, true story about a father working from home and the small daughter who simply wants to be close, told for young children.
Dedicated to Tiara, “who taught me that the quietest love is often the strongest.”
Essays
Beyond the books
Beyond his books, Ayoposi writes long-form essays exploring chronic illness, rehabilitation, disability, patient experience, resilience, and the realities of living with CIDP. His work seeks to offer honest companionship to readers while encouraging deeper conversations about healthcare, recovery, and the often unseen work of rebuilding a life.
He lives in the United Kingdom with his wife and daughter, whose love and steadfast support remain at the heart of his journey.
Featured in
Foundation for Peripheral Neuropathy
Finding Another Way to Write
Inflammatory Neuropathies UK
What I Would Tell Someone Newly Diagnosed With CIDP
Whether through books or essays, his purpose remains the same: to write honestly about illness, recovery, resilience, and what survives after crisis.
He designed and personally manages this site, from the writing to the WordPress build itself.
Letters on recovery and identity